Parent carer Patricia was part of a group of 22 women who met on a weekly community Zoom meeting, who collectively decided to write a book called Life Inna Lockdown 2020 – Behind Closed Doors.
I am carer for my 26-year-old son who has autism and learning difficulties. I have been a member of Carers in Bedfordshire for around 15 years and it has been an invaluable service.
My son lives at home and attends a day centre each day, which provides brilliant respite. I also have a daughter, who felt the brunt of having an older sibling with a disability growing up, but she has come through unscathed! She really benefitted from being part of the young carers group.
In chapter 15, entitled ‘Challenging Change’, I record the changes that were happening in my life as a mother, carer and teaching assistant. I express my fears, but celebrate getting through having my son at home 24/7 for 14 weeks. I had to get a grip and re-arranged my house into an ‘autism centre.’ I put a desk with resources in my hallway. I created games in the house and got out all his favourite things, such as his electric keyboard.
Through writing the book we formed a sisterhood with some amazing women and our special friendship lives on forever.
Life Inna Lockdown 2020 – Behind Closed Doors (Dee Bailey) is available from Amazon.