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Understanding Conditions

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For support for conditions in Bedfordshire.

When you are caring for someone with a specific condition e.g. stroke, dementia, depression it can help if you learn about the condition.  This will help you understand how the condition impacts the person you care for and how to spot signs of deterioration.  It will also help you to communicate easier with health professionals as you will become familiar with the language they use.

Today, most conditions have a website explaining the symptoms and how to cope with them.  For a comprehensive list see Bedford Hospital.  Most national organisations websites will have a section specifically for carers and even an online forum where you can share advice and information as well as a listening ear, essential for any carer. 

As it is not possible to cover all the conditions so the focus in this section is on conditions with organisations who are based in Bedfordshire.

When you are caring for someone with a specific condition e.g. stroke, dementia, depression it can help if you learn about the condition.  This will help you understand how the condition impacts the person you care for and how to spot signs of deterioration.  It will also help you to communicate easier with health professionals as you will become familiar with the language they use.

Today, most conditions have a website explaining the symptoms and how to cope with them.  For a comprehensive list see Bedford Hospital.  Most national organisations websites will have a section specifically for carers and even an online forum where you can share advice and information as well as a listening ear, essential for any carer. 

As it is not possible to cover all the conditions so the focus in this section is on conditions with organisations who are based in Bedfordshire.

Autism / ADHD

Caring for a child with autism, the following organisations are providing support.

Autism Bedfordshire throughout Bedfordshire

The Avenue, Biggleswade

Outside In (autism & adhd), Clifton

Faces Spectrum Support - provides emotional support for families 

For adults living with autism

Autism Bedfordshire

Deafness

Access Bedford

Access Bedford Facebook page

Bedford Borough & Central Bedfordshire - Deaf and Hearing loss

Cancer

MacMillan Cancer Support is the main cancer charity working in Bedfordshire.  They produce “I'm looking after someone with cancer” and “Guide for Young People looking after someone with cancer."

They run a Cancer Information & Support Service at the Primrose Oncology Unit at Bedford Hospital.

MacMillan runs a Welfare Rights Service for people diagnosed with cancer, including family and carers.  They aim to help prevent financial hardship and help with claiming benefits and grants.  This is available to all residents living in Bedford and Central Bedfordshire.

There are a number of local cancer support groups which are either open to carers or have separate carers group.
Bosom Pals Bedford – Partner group
Beds Prostrate – open to all
Leighton-Linslade Cancer support group – open to all

Dementia

Read about support at the MemoryinBeds website

Bedford Borough - Tibbs Dementia Foundation

Central Bedfordshire - Alzheimer's Society

Eating Disorders

Carers Eating Disorder Association Support Group, Dunstable

Caraline - Supporting adults and children living with eating disorders

Ear to Hear, South Beds.  Eating Disorder Peer Support & Recovery Coach - Restricted eating

Elderly

Age UK Bedfordshire provides a range of service for those aged 55+

Heart Conditions

The British Heart Foundation has produced “Caring for someone with a heart condition”.  Their website covers many issues related to heart disease and living healthy live styles.

The local Hearts in Beds Cardiac Support Group meets at the Priory Methodist Church, Bedford.

Learning Disablities

Mencap Bedfordshire – Signpost volunteers - providing parents with support and information

Yawn Life - providing parents with support and information

Sight Loss

Sight Concern Bedfordshire

Bedford Borough & Central Bedfordshire - Visual Impairment Team

Veterans

If you, the person you care for, or someone in your immediate family has ever served in the military (including the Reserves) then you might be able to access a number of services for military or ex-military personnel.

If you are accessing any services make them aware that you have a military background and/or family connection as this can influence which organisations are recommended to you.

Organisations supporting military families or veterans

Veterans Gateway
0808 802 1212

Royal British Legion
0808 802 8080

SSAFA
0800 731 4880

Blind Veterans
0800 389 7979

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